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  1. Our Young People's Community for young people with M.E. (aged up to and including 18 years) is free to join and includes a range of peer-support options including a safe and supportive online forum, our monthly e-magazine Cheers, and pen pal matching. We can also set up severely affected members with buddies, who will send them short letters or ...

    • Welfare Benefits
    • Talking Things Through
    • Other Sources of Support

    If you have M.E. or care for someone who has M.E., you may be entitled to claim welfare benefits. Action for M.E. produces the following factsheets giving key information about the application, assessment and appeal process specifically in relation to M.E. 1. ESA: an overview(July 2020) 2. PIP: an overview(July 2020) 3. Universal Credit: an overvie...

    Our understanding Information and Support teamare able to share general information about the welfare benefits system and help you navigate other online information resources. We can also 1. share detailed information about Personal Independence Payments (PIP) and Employment and Support Allowance (ESA), and the work capability assessment as part of...

    You can also contact the following organisations for welfare benefits information. 1. Turn2Ushas a welfare benefits calculator so you can check what you are entitled to, and information about grants you might be able to apply for. 2. Citizens Advice Bureauoffers confidential advice online over the phone and in person, for free, as a national charit...

  2. Supported living services can be provided by the local council or charities, or they may be run by commercial companies. Social services will let you know about local supported living services if it seems like they might meet your needs. If a supported living service arrangement is not suitable for you, you may still want to think about help at ...

  3. Ways to help yourself cope in a crisis. Practical tools to use right now, by yourself, wherever you are. If you're feeling in crisis, this resource is for you. If you feel unable to keep yourself safe, it's a mental health emergency. Get emergency advice.

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  5. CMHTs support people with mental health problems living in the community, and also their carers. The team may include a community psychiatric nurse (CPN), a psychologist, an occupational therapist, a counsellor and a community support worker, as well as a social worker. Often, a member of the team will be appointed as your care coordinator, to ...

  6. NHS ME/CFS Specialist Services. We provide a comprehensive listing of all NHS specialist services for adults and children. Patients can contact any of the services for information, but referrals for assessment, diagnosis, and management advice, must be made by your GP or the professional responsible for your healthcare.

    • Learn as much as you can about your condition so you can explain to others what you experience. Many people’s only source of information about mental health is what is portrayed in the media, which more often than not is inaccurate or even demeaning.
    • Identify someone you think might be a support to you. Whether a friend or family member, this should be a person you trust, who has displayed compassionate tendencies in the past.
    • Think about what you hope to get out of the conversation you will have with this person. Are you looking for someone to vent to (“Work was so rough today that I spent 30 minutes in the bathroom crying”), or would you like help solving a problem (“I’m so anxious that I need help getting to the grocery store”)?
    • Recognize that some people may be better at supporting you than others. The first person you confide in may not understand. Keep sharing until you’ve found the person or people who can support you.
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