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      • Research teams which involve patients and the public run better studies because: they are more relevant to participants they are designed in a way which is acceptable to participants they have participant information which is understandable to participants they provide a better experience of research
      www.hra.nhs.uk/planning-and-improving-research/best-practice/public-involvement/
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  2. Members of the public include patients, potential patients, carers and people who use health and social care services as well as people from organizations that represent people who use services.1 For this reason, it is also often referred to as ‘patient and public involvement’ (PPI). Many different terms are used internationally to describe patients and members of the public involved in ...

    • Introduction to Planning An Evaluation
    • Determine Who Will Be Involved
    • Describe The Intervention Or Programme
    • Define The Evaluation Questions and Objectives
    • Agree The Evaluation Design and Methods
    • Consider The Context of The Intervention
    • Consider How The Evaluation Findings Will Be Disseminated and Used
    • Prepare An Evaluation Plan Or Protocol
    • Set Milestones and Manage Time
    • Allocate Resources

    Successful evaluation can only be achieved with careful planning. You should think through each stage of evaluation and consider: 1. what is the aim of the evaluation 2. who needs to be involved (this will include individuals who deliver or benefit from the service or intervention being evaluated, as well as the evaluation team and potential users ...

    You will need to decide who will be involved in and undertake the evaluation. It can be an individual or group internal to the organisation who are implementing the intervention, an external evaluator, or some combination of the 2 working together.

    If it does not already exist, a clear and detailed description of the service, intervention or programme that you will evaluate should be developed. The description should clarify the overall purpose of the intervention (its aim) as well as short, medium, and long-term goals. The intervention or programme description should include: 1. what problem...

    An evaluation usually addresses questions about whether and how the aims and objectives of an intervention were achieved. The evaluation questions are critical because they shape what data is needed and how they will be analysed. Once the evaluation questions are defined, it is useful to formulate specific objectives for the evaluation to help stru...

    The design of an evaluation depends on the specified questions and the selected methods. Different methods are needed to address different questions. We discuss evaluation methods further in the methods section. The questions also determine the design of the evaluation. We have discussed 3 types: 1. Outcome evaluation. 2. Process evaluation. 3. Eco...

    The wider context for the intervention and evaluation include local environmental, social and cultural factors. Consideration of these factors including relevant policies and targets at local and national level can help identify factors that may affect intervention implementation and effectiveness. The following questions may help identify relevant...

    Dissemination may be more than a single report or a presentation: a dissemination strategy can be designed to promote use of the findings, for example, to improve an intervention or change a service, through different channels. The nature of the dissemination strategy will depend on the field and what changes you want to make. It could comprise an ...

    An evaluation plan or protocol is a written document that describes how you will manage the evaluation. It clarifies the steps needed to assess the outcomes and processes of an intervention. The evaluation team and the stakeholders should agree on the contents of the evaluation plan. These usually include: 1. an overview of the intervention being e...

    It is important to outline a timetable for the evaluation which includes major milestones, such as: 1. obtaining any necessary ethical or other approvals 2. submitting an application for funding if necessary 3. completing recruitment of participants 4. start and end date of the intervention 5. time periods for data collection 6. data analysis 7. wr...

    When planning an evaluation, you will need to consider the resources including funds, time, staff capacity, skills, training, and opportunity costs (that is, what might be gained from alternative uses of the resources). An assessment of the resource implications (whether potential savings or additional expenditure) as a result of the findings of th...

  3. Jun 29, 2021 · The purpose of involving the public and patients in research is to help them have a say in decisions about healthcare and enable patients or other people with relevant experience to contribute to how research is planned, carried out, and shared with a wider audience.

    • Pooja Saini, Shaima M. Hassan, Esmaeil Khedmati Morasae, Mark Goodall, Clarissa Giebel, Saiqa Ahmed,...
    • 2021
  4. Aug 7, 2018 · Helping public health practitioners conducting evaluations – what the evaluation is, when it should be undertaken and the different types of evaluation available.

  5. 2 days ago · Background Working alongside patients and the public to shape and engage with research, Patient and Public Involvement and Engagement (PPIE), facilitates more impactful research outcomes. The UK Standards for Public Involvement provides a framework for conducting PPIE; however, they do not refer directly to ethical conduct. Research ethics involve the moral principles that govern researchers ...

  6. Enabling meaningful involvement requires understanding why patients and the public get involved in the first place, and committing to supporting them, valuing them, and giving them feedback about how their efforts shaped the research.

  7. Jul 6, 2016 · It is important to involve patients and the public in evaluation activity, offering essential guidance and principles of best practice. The authors discuss the main challenges of undertaking evaluations and offer recommendations to address these, drawing on their experience as evaluators.

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