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What is the ME Association?
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Why did the ME Association oppose the PACE trial?
The ME Association has been providing expert help since 1980. We understand the challenges faced by people with ME/CFS and Long Covid and believe that nobody should struggle alone. We provide a safe and welcoming community for people to come together and benefit from sharing their experiences.
- Support
The ME Association works with local support groups to...
- Me Association Shop
Members receive the excellent, ME Essential Magazine, for a...
- About The Me Association
understand the challenges faced by people with PVFS, ME/CFS,...
- Membership
We help people with ME/CFS and Long Covid, but you don’t...
- Ramsay Research Fund
ME/CFS is a complex illness with symptoms that cut across...
- ME Connect
We are a small medical charity and we do not have the...
- ME/CFS: The Care You Should Expect
Myalgic encephalomyelitis (or encephalopathy)/chronic...
- ME/CFS Symptoms and Diagnosis
People with very severe ME/CFS are in bed all day and...
- Support
- What Is The Cause?
- Living with ME/CFS
- How Is ME/CFS Diagnosed?
- What Treatments Are available?
- The Role of Me Research UK
- More Information About ME/CFS
The cause of ME/CFS is not yet known. In some people the illness develops gradually over months or years, while in others it appears to be triggered by a viral or bacterial infection. Herpesviruses, enteroviruses and Q fever have all been suggested as possible triggers of ME/CFS. More recently, people with chronic illness following COVID-19have rep...
ME/CFS affects an estimated 250,000 people in the UK and over one million people in the USA – this is more than the number with HIV infection or multiple sclerosis. The physical symptoms vary in severitybetween individuals, but can be as disabling as multiple sclerosis, congestive heart failure and other chronic conditions. The course of the illnes...
A positive diagnosis of ME/CFS can only be made by a suitably qualified medical practitioner such as a GP or hospital consultant. In the UK, most people seeing a doctor in the NHS are diagnosed using the NICE guideline. As there is no specific laboratory test for ME/CFS, a diagnosis is based on a person’s medical history and pattern of symptoms. Im...
There is not yet any treatment that can cure ME/CFS. Until a cure is found, there are a number of approaches that can help people manage their illness, although it is very important that these are discussed with a GP beforehand. Drug treatments are available for some of the specific symptoms of ME/CFS, such as sleep disturbances, pain, headaches, a...
ME Research UK exists to fund high-quality biomedical research into ME/CFS – to find its cause, to develop effective treatments, and ultimately to discover a cure. Thanks wholly to the support of donors, to date we have provided over £2 million of funding for more than fifty research projectsaround the world, but there is still much more to do. If ...
For a more detailed explanation of ME/CFS, its symptoms and treatment, we recommend the website of the US Centers for Disease Control and Prevention.
Myalgic encephalomyelitis, also called chronic fatigue syndrome or ME/CFS, is a long-term condition with a wide range of symptoms. The most common symptom is extreme tiredness. ME/CFS can affect anyone, including children.
The ME Association is a UK health charitable organization that provides information, advocacy, and services to persons and families affected by ME/CFS, and raises funds for research into ME/CFS. It has been reported to be one of the two largest UK charities for ME/CFS.
The ME Association wants the UK to be a better place for people with ME/CFS – somewhere where the physical nature of the illness is taken seriously and sufferers get the respect they deserve. We bring campaigning, information and support to the mix to make this happen and run ME Connect, the UK's premier ME/CFS helpline.
