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  1. The film is about parents who form a biotechnology company to develop a drug to save the lives of their children, who have a life-threatening disease. The film is based on the true story of John and Aileen Crowley, whose children have Pompe disease.

  2. Feb 8, 2010 · The reality. Pompe disease causes generalized muscle weakness, enlarged heart, eating difficulties, failure to thrive, respiratory distress and hearing loss. A severe infantile form is estimated ...

  3. Extraordinary Measures” is an ordinary film with ordinary characters in a story too big for it. Life has been reduced to a Lifetime movie. The story, based on fact, is compelling: Two sick children have no more than a year to live when their father determines to seek out a maverick scientist who may have a cure.

  4. One of the main questions that arises from “Extraordinary Measures” is the ethical dilemma surrounding the use of experimental drugs. The father in the film, played by Brendan Fraser, is desperate to find a cure for his children’s rare genetic disorder.

  5. Jan 21, 2010 · When the film Extraordinary Measures debuts on January 22, it will tell the story of one man's quest to obtain treatment for his children who suffer from a rare metabolic disorder called Pompe disease.

  6. Mar 15, 2010 · Extraordinary Measures is the story of the desperation of a father to find a drug to prolong the lives of his sick children, Megan and Patrick, who both have an incurable genetic condition with a life expectancy of nine years of age.... Directed by Tom Vaughan.

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  8. Jan 21, 2010 · A review of Extraordinary Measures Rare diseases and drug discovery don't usually make for Hollywood blockbusters. But today (January 22) a film about a genetic affliction that strikes fewer than 10,000 people worldwide hits movie screens, and it has some serious star power behind it.

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