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1. • • There are support groups around the world for people and families affected by FTD. We are part of an international consortium bringing those groups together called World FTD United. In the UK, we help to run support groups for people and families affected by FTD through Rare Dementia Support:
     www.ftdtalk.org/support/

     Support - FTD Talk

2. People also ask

   Are there support groups for people and families affected by FTD?

   • There are support groups around the world for people and families affected by FTD. We are part of an international consortium bringing those groups together called World FTD United. In the UK, we help to run support groups for people and families affected by FTD through Rare Dementia Support:

   Support – FTD Talk

   www.ftdtalk.org/support/

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   Where can I find support for a person with FTD?

   • For support for both the person with Frontotemporal Dementia (FTD) and their family and carers, Rare Dementia Support runs national groups providing information and practical assistance. Contact details can be found online at raredementiasupport.org.

   Living with frontotemporal dementia - Alzheimer's Research UK

   www.alzheimersresearchuk.org/dementia-information/types-of-dementia/frontotemporal-dementia/support/

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   What are the different types of FTD support groups?

   • FTD Support Group: focused on carers of people with any form of FTD. PPA Support Group: focused on people with PPA and their carers and family members. Familial FTD Support Group: focused on at-risk family members from genetic FTD families. For more information on genetic FTD and living at-risk of familial FTD click here.

   Support – FTD Talk

   www.ftdtalk.org/support/

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   Does RDS have a FFTD support group?

   • RDS runs an FFTD Support Group for family members at risk of all inherited forms of familial frontotemporal dementia. They hold at least one meeting per year, and a newsletter is also published and circulated to members between meetings. Families affected by FFD are welcome to join the fFTD Support Group meetings.

   Living with fFTD – Rare Dementia Support

   www.raredementiasupport.org/familial-frontotemporal-dementia/living-with-fftd/

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   What are FFTD support groups?

   • Support groups for those living with fFTD, as mentioned in our fFTD Support Group meetings, are a great way of accessing help, information, advice and support in a space of mutual respect and understanding. They provide opportunities to speak to professionals and ask questions, as well as for connecting with others in similar situations.

   Living with fFTD – Rare Dementia Support

   www.raredementiasupport.org/familial-frontotemporal-dementia/living-with-fftd/

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   Where can I find a local FTD support group?

   • It can be difficult it find local FTD specific support options. However, many communities offer younger onset or early stage dementia support groups that focus on adjusting to a new diagnosis, finding ways to adapt and live positively. Check with the local Alzheimer’s Association or memory care center for groups in your area.

   Support for People with FTD (Frontotemporal Degeneration) | AFTD

   www.theaftd.org/living-with-ftd/support-for-people-with-ftd/

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3. www.raredementiasupport.org › living-with-ftdLiving with FTD - Rare Dementia Support

   www.raredementiasupport.org › living-with-ftd

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   People living with FTD and their friends and family are welcome to join our London support group meetings or to see what regional support groups might be available. Please visit our Meetings page for details of upcoming meetings.

4. www.ftdtalk.org › supportSupport - FTD Talk

   www.ftdtalk.org › support

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   In the UK, we help to run support groups for people and families affected by FTD through Rare Dementia Support: FTD Support Group: focused on carers of people with any form of FTD. PPA Support Group: focused on people with PPA and their carers and family members.

5. Videos

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     9:51

     youtube.com

     Frontotemporal Dementia (FTD) from a Caregiver - Part 1: First Signs

     13 May 2015

     105.2K views

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     10:22

     youtube.com

     Frontotemporal Dementia (FTD) from a Caregiver - Part 3: FTD Behaviors

     13 May 2015

     32.4K views

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     nia.nih.gov

     Providing Care for a Person With a Frontotemporal Disorder

     13 Nov 2023

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6. www.raredementiasupport.org › familial-frontoLiving with fFTD – Rare Dementia Support

   www.raredementiasupport.org › familial-fronto

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   Families affected by fFTD are welcome to join our fFTD Support Group meetings. There is also a separate FTD support group for people with symptoms. More information on upcoming meetings can be found on our Meetings pages .

7. www.theaftd.org › support-for-people-with-ftdSupport for People with FTD (Frontotemporal Degeneration) | AFTD

   www.theaftd.org › support-for-people-with-ftd

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   AFTD Support Group for People with FTD. A mutual support group that is facilitated by AFTD staff and meets monthly via Zoom. Contact info@theaftd.org or 866-507-7222 for more information.

8. www.alzheimers.org.uk › about-dementia › typesWhat treatment and support is there for frontotemporal dementia?

   www.alzheimers.org.uk › about-dementia › types

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   Support groups can offer useful advice and emotional support to people living with FTD and those who care for them. There are specialist support groups for younger people with dementia or FTD and for people affected by familial FTD (see our page for details).

9. www.alzheimersresearchuk.org › supportLiving with frontotemporal dementia - Alzheimer's Research UK

   www.alzheimersresearchuk.org › support

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   Rare Dementia Support runs national groups providing support and information for people with FTD, their families and carers. Contact details can be found online at raredementiasupport.org. The Rare Dementia Support Network were vital in supporting me following my mum's diagnosis of FTD. - Shaheen.

10. www.raredementiasupport.org › familial-frontoSupport in later stages – Rare ... - Rare Dementia Support

    www.raredementiasupport.org › familial-fronto

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    Families affected by fFTD may find coming along to our fFTD Support Group meeting helpful, which is held annually. We also invite carers to join our separate FTD Support Group meetings.