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- Through open and empathetic conversations, families can better understand the patient’s condition, expectations, and concerns while the patient feels heard and valued (Rawlings et al. 2019). This process strengthens relationships, fosters trust, and creates a supportive environment where emotions and thoughts can be honestly shared.
www.cambridge.org/core/journals/palliative-and-supportive-care/article/strengthening-family-bonds-through-endoflife-conversations-understanding-the-importance-of-emotional-support-and-open-communication/9DAB6D83886AD4FBCAF51EACA7D222ACStrengthening family bonds through end-of-life conversations ...
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Jun 28, 2012 · The interviews clearly revealed the fact that dynamics between family members and the dying person are not necessarily positive and affirming at the end of life. Though participants often expressed shame in the telling of such stories, family struggles, lack of family support, and even an absence of physical presence in the hospice were common.
- Alex Broom, Emma Kirby
- 2013
Jan 1, 1991 · Future research should develop a family-oriented communication framework which is designed for the Chinese and Eastern contexts that targets on managing family expectations during prognosis disclosure and facilitating patients’ fulfilment of familial roles while making EOL decision-making.
Jul 5, 2021 · This study presents a brief review of extant literature and a conceptual framework designed to foster research in family caregiving systems, specifically how family dynamics influence preparedness for the transition to EOL caregiving.
- Aimee L. Fox, Julia L. Sharp, Christine A. Fruhauf
- 2021
- Referring to The Future Indirectly
- Referring to The Future Directly
- Framing Illness Progression and End of Life in General Terms
- Acknowledging Uncertainty About The Future
- Displaying Sensitivity
- Emphasising The Positive
Many of the included studies identify a diverse range of practices people use to more or less indirectly refer to illness progression and end of life. The most indirect practices included clinicians alluding to the possibility of illness progression and end of life, such as by stating that current treatment has been exhausted: “I think we’ve gotten...
In contrast to practices that discuss future deterioration and end of life indirectly, practices where such matters are referred to directly have also been observed and analysed in many of the included studies. Evidence suggests discussions about end of life are sometimes initiated by clinicians indirectly, and subsequently made explicit by patient...
In contrast to hypothetical scenarios, which involve discussions related to the individual patient, several studies included in the review identify another practice which involves framing matters abstractly, as something that could be faced by people more generally rather than a particular patient specifically . This generalised framing occurs in t...
A few of the included studies examined a practice that involves clinicians using expressions that qualifies their level of certainty, as well as explicit statements of uncertainty. The first part of the following instance includes qualifying expressions (‘looks like’ and ‘probably’), and the second part an explicit statement of uncertainty: “This l...
In addition to practices described above, such as discussing illness progression and end of life indirectly, several of the included studies identify other practices with which clinicians can empathise with a patient or family member’s situation during discussions of illness progression and end of life. Such communication practices include explicit...
Some of the included studies consider ways that discussions about illness progression and end of life routinely culminate in shifts to discussing something positive, by clinicians, patients and family members. This occurs in the second sentence of the following example: “Essentially erm the cancer’s sort’ve overwhelming the body and the heart and o...
Scholarly and clinical attention to communication at the end of life is imperative to improve medical, psychological, and relational outcomes for those dealing with the death and dying process (i.e., individuals who are terminally ill, as well as their close family members).
Sep 27, 2024 · The interviews focused on the specific experiences, challenges faced, support received, and coping strategies of family caregivers of patients with end-of-life cancer during the transition from hospital to home palliative care.
The transition to providing end-of-life (EOL) care to a family member can be challenging for family caregivers as they face difficult decisions regarding medical course of treatment, increasing caregiving responsibilities, and anticipatory grief. ...
