Complete The Study Screener. See If You Qualify for The Study
- Gene Therapy
Learn More About Gene Therapy
From Sangamo Fabry
- Fabry Disease
Learn more about
Sangamo Fabry
- Do You Qualify For STAAR?
See If You Qualify And Join The
Study Today.
- Study Overview
Learn more about the Sangamo
Fabry Clinical Study
- Contact Us
Contact us for more information
about our Sangamo study.
- Aged 18 Or Over?
Trying to Treat the Genetic Cause
of Fabry Diseases
- Gene Therapy
Get Information On Cancer Treatments. Cancer Research UK. Learn More About Cancer Today. Cancer Research UK. Together We Are Beating Cancer.
Search results
Studies show that the majority of patients with cancer want their family to be involved in discussions about limiting treatment near the end of life and that family involvement in decision making has been associated with greater patient satisfaction [2, 3, 4].
Each article described the benefits of adopting a family therapy approach on outcomes such as family communication, bereavement and decreased carer burden. Four papers described specialist family therapists delivering the interventions, and one used oncology nurses drawing on the theories and techniques of family therapy.
- Liz Forbat
- 2020
Apr 1, 2015 · Shared decision-making is an important component of patient-centered care and is associated with improved outcomes. Little is known about the extent and predictors of patient involvement of their family in decisions about cancer treatments.
- Gabriela S. Hobbs, Mary Beth Landrum, Neeraj K. Arora, Patricia A. Ganz, Michelle van Ryn, Jane C. W...
- 2015
- Study Design and Participants
- Sampling Strategy and Developing of The Interview Guide
- Memo-Writing
- Data Analysis
- Rigor
A descriptive qualitative research approach - as Sandelowski described it - was used in order to get information from oncologists and oncology nurses on family involvement in decisions to limit treatment. This methodological approach is especially suited to depict precisely participants’ views and obtain answers to research questions that are of a...
We used a purposive sampling strategy to collect our data. Selected participants were first contacted by email with a detailed study description and were re-contacted after 1 week by telephone and invited to participate in the interview study. For our first interviews we developed a preliminary interview guide. It was developed in three steps: 1) i...
During the whole research process, we wrote both descriptive and reflective case-based memos on the interviewing process, documented participants’ reactions to the asked questions and also documented our emerging new ideas during interviews. Data from the memos were integrated into analysis.
Interviews were audiotaped, transcribed verbatim, and analyzed according to the qualitative inductive content analysis, including open coding, creating categories and themes. In the first step of open codings, interview data were analyzed “sentence by sentence”, segmented and open codes were created. A code is understood as a meaningful label for t...
The following techniques were used to assess credibility, transparency, analysability and usefulness of the data .
- Katsiaryna Laryionava, Timo A. Pfeil, Mareike Dietrich, Stella Reiter-Theil, Wolfgang Hiddemann, Eva...
- 2018
Apr 1, 2021 · Those with a family history of cancer often make limited behavioural changes. •. Limited changes occur due to effort required, perceived existing health, and more. •. Cancer negatively impacts on relatives' overall wellbeing and family relationships. •. Better support for relatives could help them cope better after the diagnosis. Abstract. Purpose.
- Beth McKeague, Rebecca Maguire
- 2021
Mar 31, 2022 · The review considers that psychosocial interventions for young people with cancer should include: Identifying key individuals in the lives of patients; Creating opportunities for patients to talk about their feelings; Encouraging their communication with family and friends.
People also ask
Are family members important companions of patients with cancer?
Are family members important in the decision-making process of cancer patients?
Does family therapy help people living with cancer?
Who is most likely to rely on family in cancer treatment?
Does family influence a patient's decision against further cancer-specific treatment?
Do family members of cancer patients need support?
Mar 24, 2022 · Choose trusted family and friends to talk to regularly about your cancer and treatment. This may feel intrusive if you’re a private person, but it can be reassuring when other people know what's going on, even if they don't live close to you. Tell your healthcare team.
