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Good data protection practice (by design and default) facilitates data sharing, and guidance is available from the MRC Regulatory Support Centre. For legal and ethical reason it is important to be transparent about how people’s data will be shared (NHS research transparency).
Sep 14, 2016 · Medical Research Council (MRC) policy outlining expectations and requirements for sharing research data beyond primary research purposes for all MRC-funded research.
- How Can I Access Health Data For Research?
- Data and Confidentiality Law
- Key Facts
- Learning Resources
- Further Information
- Working in Partnership
- Still Have A Question?
You can use the Health Data Research UK Innovation Gatewayto discover and request access to health data for research. Our Health Data Access Tool Kitwill help you understand how to access routinely collected NHS data. The toolkit signposts the approvals required and explores the issues that you need to consider and address within a successful appli...
In the UK, the use of identifiable information is primarily governed by the common law of confidentiality and data protection law. Common law requires researchers to respect any ‘duty of confidence’ when accessing or sharing confidential information. Learn more about confidentiality and how it relates to data protection(including guidance on the le...
Whilst researchers have an important role to play, for example, in respecting confidentiality and being clear, open and honest about how they intend to use data, ultimately organisations are responsible for compliance with GDPR. In the UK, consent is unlikely to be the ‘lawful basis’ for research. It’s likely to be ‘public task’ (university and UKR...
You can use the: 1. Research, GDPR and confidentiality quizto test yourself and earn a certificate 2. Research, GDPR and confidentiality – what you really need to knowto complete our bite-sized e-learning modules 3. UK GDPR fact or fiction board gameto test your knowledge of GDPR
You can visit the following websites: 1. NHS-HRA GDPR: technical guidancefor data protection officers, information governance officers and research governance managers 2. NHS-HRA GDPR guidance for researchers and study coordinators 3. ICO web pages on GDPR– these are not necessarily research specific
We work with: 1. Health Data Research UKto create appropriate infrastructure and increase the use of health data to enable research and innovation for patient benefit 2. Research Advisory Group hosted by NHS Digital, where we and others are working with NHS Digital to help them improve their data and data services 3. Health Research Information Gov...
If you have a specific question about using data in research which we haven’t answered here email: rsc@mrc.ukri.org Last updated: 4 June 2024
The Medical Research Council (MRC) is a national funding agency dedicated to improving human health by supporting research across the entire spectrum of medical sciences, in universities and ...
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Data Plan. “All applicants submitting funding proposals to the MRC are required to include a Data Management Plan (DMP) as an integral part of the application. MRC Institutes and Units are required to submit one as part of the Quinquennial Review (QQR) report.”.
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MRC’s overarching aim for data-sharing is to maximise the life-time value of research data assets for human health and to do so timely, responsibly, with as few restrictions as possible, in a way consistent with the law, regulation and recognised good practice.
