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  1. What does my brain do? What is dementia? Who gets dementia? What happens to someone with dementia? Stories from children who know someone with dementia. The brain is like a jigsaw. As the disease progresses the jigsaw breaks up and pieces can be lost forever. Can a person with dementia get better? What can I do to help someone with dementia?

    • What Can I Do

      Visit coping when somebody in your family has dementia to...

    • Types of Childhood Dementia
    • Childhood Dementia Symptoms
    • Causes
    • Diagnosis
    • Treatment
    • Prognosis
    • Coping
    • Summary

    Childhood dementia is usually related to neuronal ceroid lipofuscinoses (NCL), a group of rare, fatal genetic conditions. The three types of NCL are: 1. Late infantile: Diagnosed in infants and includes Jansky-Bielschowsky disease 2. Juvenile: Diagnosed in children and adolescents and includes Batten disease(the most common form of NCL) 3. Adult: D...

    The symptoms of childhood dementia are caused by brain damage that worsens over time. It is common for children to lose skills that they previously developed or mastered. Childhood dementia symptoms may include: 1. Memory loss 2. Confusion 3. Inability to concentrate 4. Personality changes 5. Hyperactivity 6. Inability to regulate emotions Dependin...

    Childhood dementia occurs when nerve cells in the brain (neurons) lose connections to each other and start to die. A group of rare genetic conditions causes this brain damage. NCL causes a substance called lipofuscin to build up in the brain, leading to brain damage. These diseases are genetic and caused by autosomal recessive traits. That means bo...

    The diseases that cause childhood dementia may be diagnosed at birth or later in childhood. If your medical team is concerned that your child is at risk for NCL, they may recommend the following diagnostic tests: 1. Magnetic resonance imaging (MRI)of the brain 2. Computed tomography (CT) scanof the brain 3. Electroencephalogram(EEG) 4. Genetic test...

    No treatments exist to stop or slow dementia caused by neurodegenerative diseases.Treatment for NCL usually targets the symptoms. There is no cure for NCL genetic diseases. Treatment options may include: 1. Muscle relaxants to treat spasticity(muscle stiffness or inflexibility) 2. Sleep aidesto treat insomnia 3. Antiseizure drugsto treat epilepsy 4...

    Childhood dementia is a severe condition. It cannot be reversed, and most children require constant care and supervision. The genetic diseases that cause childhood dementia are fatal. The younger the child is diagnosed, the worse the prognosis usually is. Children diagnosed with NCL in their first year of life are not expected to live beyond age 10...

    Parents and caregivers of children with childhood dementia need support in all areas of their lives. A support groupmay be helpful for learning about resources and connecting with others. Organizations that offer support groups for caregivers of children with NCL include: 1. Genetic and Rare Diseases Information Center 2. Batten Disease Support and...

    Childhood dementia is a progressive brain disorder caused by a rare genetic disease. There is no cure for childhood dementia, and the symptoms worsen over time. Possible symptoms include memory loss, confusion, and the inability to speak. To diagnose childhood dementia, your healthcare team will focus on diagnosing the underlying disease. Your chil...

  2. www.childhooddementia.org › what-is-childhood-dementiaWhat is Childhood Dementia?

    Childhood dementia results from progressive brain damage and is caused by over 100 rare genetic disorders. These conditions are genetic and children are born with them. You may be familiar with some of the symptoms of adult dementia. Kids also suffer from these symptoms like confusion, loss of memory, loss of speech and more.

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  3. 31 January 2022. Should I tell a child or young person that their relative or friend has dementia? It is natural to want to protect children and young people from difficult or confusing situations. However, they are often aware of unusual atmospheres or tensions, even when they haven’t been told the facts.

  4. Dec 21, 2022 · "Childhood Alzheimer’s" is a casual name that refers to two rare conditions: Niemann-Pick disease type C (NPC) and Sanfilippo syndrome. Unlike the name might infer, it’s distinct from the forms of Alzheimer’s disease, which typically affects people who are above 65 years old.

  5. Children who have a relative with dementia may express their feelings and emotions in different ways. Find out how best to support them.

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  7. Mar 14, 2020 · This study of 10 recent picturebooks in English about dementia approaches the texts in the context of health communication to consider exactly how books about dementia for young children explain and depict the condition, and the implications of their chosen metaphors, visual and verbal.

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