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Months to years
- Life expectancy with MDS can range from months to years, depending on what type of MDS you have, how likely it is that the MDS will become leukemia, and other risk factors you may have.
www.healthline.com/health/mds-prognosis
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The survival time for each MDS risk group is usually given as the median survival in years. This means that of the people studied in that risk group, half lived for less time than the median number of years, and half lived for longer.
- What’s the prognosis for MDS?
- MDS life expectancy
- MDS outlook
- Coping and support
Myelodysplastic syndromes (MDS) affect the production of blood cells in your bone marrow. Your risk of developing MDS depends on many factors, including age.
MDS is sometimes referred to as “pre-leukemia.” That’s because about one-third of people with MDS will eventually develop acute myeloid leukemia (AML).
About 86 percent of people are over age 60 at diagnosis. Only 6 percent are under 50 years old.
In MDS, the body produces too many immature bone marrow cells, also known as blasts. These abnormal blasts crowd out the healthy, mature cells that your body needs.
In some cases, this can be cured by a stem cell transplant. But that can be a risky procedure, and it can’t be performed on everyone. Other treatments are designed to prevent or delay the development of AML.
Read on to learn more about MDS and factors that affect your outlook.
Life expectancy with MDS can range from months to years, depending on what type of MDS you have, how likely it is that the MDS will become leukemia, and other risk factors you may have.
Your doctor may use a scoring system to determine the overall prognosis. This is one way to estimate life expectancy with MDS.
These systems consider different factors about your condition and provide you with a score that tells you the risk of the MDS becoming leukemia. The score also gives your doctor an idea of your overall outlook.
These scores can also be linked to average survival rates. However, everyone’s situation is unique. Survival rates can’t be used to accurately predict what will happen for any one person in the future, but they can be used to help you and your doctor figure out how best to approach your treatment.
There’s more to a prognosis than survival statistics. Most people with MDS don’t develop AML. Here is the potential risk of developing leukemia within five years for each risk category:
Your individual outlook will depend on:
•your age
•overall health
•type of MDS
•the treatments available to you
MDS is a serious disease that requires careful monitoring. Find a healthcare team experienced in treating MDS. Ask about all your treatment options, as well as the pros and cons of each. Your doctor can also provide information on clinical trials.
The following organizations can provide more information and point you toward support services:
•AA-MDS International Foundation: stories of hope, support networks, and patient helpline: 1-800-747-2820
•CancerCare: free, professional support services, including education, counseling, financial assistance information, and support groups. To speak with an oncology social worker, call 1-800-813-HOPE (4673)
•MDS Foundation: information about support groups for patients, caregivers, and family members. To contact the MDS Foundation, call 1-800-637-0839.
Ask your doctor for referrals to local support services.
- Ann Pietrangelo
Median survival is one way to look at outcomes. It is the time after diagnosis at which half the patients in a certain group are still alive, and half have died. This is a middle value – half the patients live longer than this, and half do not live this long.
Dec 7, 2022 · Myelodysplastic syndrome (MDS) is a type of cancer in which the bone marrow does not produce healthy cells. Find out here about the outlook and life expectancy for a person with MDS.
Apr 12, 2022 · In order to describe the prognosis of MDS patients, several endpoints are used. The most important parameter is overall survival (OS). In addition, the time to the development of AML, the cumulative risk of AML, or leukemia-free survival (LFS) is usually estimated.
- 10.3390/cancers14081941
- 2022/04
- Cancers (Basel). 2022 Apr; 14(8): 1941.
Feb 23, 2016 · We included all patients with a primary diagnosis of MDS from 2006 to 2011 who were 65 years old or older and were enrolled continuously in parts A and B of Medicare from 2 months pre-diagnosis through death without any health maintenance organization enrollment.
Information on different types of myelodysplasia, also called myelodysplastic syndrome. Learn about symptoms, diagnosis and treatment, and how to get support.
