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ME/CFS can also affect your mental and emotional health, and have a negative effect on your self-esteem. As well as asking your family and friends for support, you may find it useful to talk to other people with ME/CFS. ME Association is a charity that provides information, support and practical advice for people affected by the condition.
We are here for people living with M.E. We're working to ensure adults, children, young people and families living with the illness are supported during this unprecedented time, and beyond. Get connected to Action for M.E. services, support and resources by phone, email and online, including peer-support and services local to you.
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Support is available from ME Connect and the telephone helpline, email and social media messaging service. We offer membership, a magazine, newsletter, free information on the website including Medical Matters, and we respond effectively to the many requests for help that we receive daily.
- Degrees of Severity
- Chronic Fatigue Syndrome
- What Causes M.E.?
- Other Factors
- Sub-Groups
The National Institute for Health and Care Excellence (NICE) acknowledges that the physical symptoms of M.E. can be as disabling as multiple sclerosis, systemic lupus erythematosus, rheumatoid arthritis, congestive heart failure and other chronic conditions. Other research shows that people with M.E. score lower overall on health-related quality of...
Within the NHS, a diagnosis of chronic fatigue syndrome (CFS) or CFS/M.E. is often given. This can make it confusing for many. In February 2015, the Institute of Medicine in the United States recommended changing the name to systemic exertion intolerance disease, or SEID. This has not been universally adopted. Action for M.E. uses the terms M.E., C...
The causes of M.E. are still being investigated. Emerging evidence indicates that there are likely to be a number of factors involved and that there may be a number of different types or sub-groups of the illness. There is evidence that certain infections can trigger the illness. Many are viruses but M.E. may be triggered in other ways. Common vira...
There are likely to be a number of factors involved. It sometimes affects more than one family member. The reasons for this are being investigated but some studies indicate that genes can play a part, as can environmental influences. It is not clear why some people get M.E. while others recover; some fully and others to a degree. Around one in four...
There is growing evidence from experts in the field of M.E. that a number of sub-groups exist within M.E., on the basis that individuals within these sub-groups differ in terms of their illness experience and the course their illness follows over time. The likelihood of multiple sub-groups within M.E. most probably explains the huge variation obser...
Aug 10, 2023 · Plans to help improve the lives of people living with myalgic encephalomyelitis/chronic fatigue syndrome ( ME/CFS) have been outlined by the government today and a consultation launched on how ...
- Department of Health And Social Care
ME Connect is our flagship service for support and information, but we also provide extensive information in the form of medical leaflets, listings for local support groups, NHS ME/CFS specialist services, and other services you might find useful.
Information and Support service by phone and email for anyone of any age living with M.E., or caring for someone with the illness, including family members, professionals and friends. Support for families by phone and email, which includes sharing information with parents to help them secure access to education and healthcare that meets the ...
