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ME/CFS can also affect your mental and emotional health, and have a negative effect on your self-esteem. As well as asking your family and friends for support, you may find it useful to talk to other people with ME/CFS. ME Association is a charity that provides information, support and practical advice for people affected by the condition.
Apr 1, 2024 · We are here for people living with M.E. We're working to ensure adults, children, young people and families living with the illness are supported during this unprecedented time, and beyond. Get connected to Action for M.E. services, support and resources by phone, email and online, including peer-support and services local to you.
Support is available from ME Connect and the telephone helpline, email and social media messaging service. We offer membership, a magazine, newsletter, free information on the website including Medical Matters, and we respond effectively to the many requests for help that we receive daily.
- Symptoms of ME/CFS
- Causes of ME/CFS
- How Is ME/CFS Diagnosed?
- Treating ME/CFS
- Living with ME/CFS
The symptoms of the condition vary from person to person. There may be times when your symptoms improve and you’ll be able to do some normal everyday activities. At other times, symptoms may get worse, affecting your daily life. If you experience new symptoms, talk to your GP or specialist as the new symptoms may be unrelated to ME/CFS. Women often...
Further research is needed to confirm what causes ME/CFS. There might be various factors involved and there may be a number of different types of the illness. These different sub-groups still need more research to be identified, including how they lead to different experiences of the condition and how it develops. ME/CFS may appear suddenly or more...
There’s no single test to detect ME/CFS. A diagnosis is made after other possible known causes for symptoms have been excluded. The earlier the illness is recognised, the sooner you can get help to manage your symptoms. Many people with ME/CFS find it helps to keep a diary of their symptoms so that they can take this to their GP or specialist. Your...
Although there’s no cure for ME/CFS, there are ways to help manage your symptoms. Because of the complexity of the illness different things work for different people. Your GP may be able to support you through managing your individual symptoms. To decide what treatment is right for you, you should look at the evidence, including published research ...
There are some things that you can do for yourself to help you manage the condition. Small changes make a difference to your energy and mobility. This is called self-management. To help with this, you might try:
Oct 29, 2021 · The NICE Guideline on ME/CFS: Diagnosis and Management [NG 206] Published 29 October 2021. Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) is a long-term condition that affects about 250,000 people in the UK. It can cause many different symptoms, which can be triggered or worsened by any kind of effort or activity.
The way you would feel at the end of that is how it feels to have M.E. every day. It is like being on a carousel: you have ups and downs but you can never get off.”. Another Action for M.E. supporter says: “I feel like I wake up with a mattress on me most mornings. When I wake up with post-exertional malaise, there is an elephant sitting on ...
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NHS ME/CFS Specialist Services. We provide a comprehensive listing of all NHS specialist services for adults and children. Patients can contact any of the services for information, but referrals for assessment, diagnosis, and management advice, must be made by your GP or the professional responsible for your healthcare.
