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Adult men with fragile X syndrome are more likely to have much more limited independence in terms of their residence, employment, ability to perform tasks of everyday life, friendships, and leisure activities. However, there is also likely to be considerable within-sex heterogeneity in the adult lives of men and women with fragile X syndrome.
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Using data from a national family survey, the authors...
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Using data from a national family survey, the authors...
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Fragile X syndrome occurs in approximately 1 in every 4,000...
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- Self-Funding
- State Funding
- The Various Types of Living Situations
- Where to Begin?
Your young adult is not guaranteed anything when they turn 21.Every state has its own process for people with disabilities to be considered for state-funded services.Every state has different levels of services they provide to people with disabilities.The following are some of the types of living arrangements that may exist in your area: 1. Completely independent. 2. A solo living environment with an intermittent case manager or care provider. 3. Shared living environment — the number of people will vary depending on local zoning laws. 4. Shared living environment plus an intermittent case manag...
Talk to your local disability organization.Talk to other parents.Call your local ARC.Google “residential living for people with developmental disabilities”- Find common interests. Identifying common interests can be helpful in making meaningful connections with anyone we interact with. Sharing an interest of yours first (favorite sports, fictional character, food, movie, television show, etc.)
- Begin with the end in mind. People living with FXS are motivated by the result, which means going through the steps from the beginning without a clear understanding of the end can be taxing.
- Prepare for transitions. Give 10- and 5-minute prompts. Some individuals may prefer visual timers/prompts, while others may prefer verbal, and some may prefer a combination of verbal and visual prompts.
- Take breaks. Any activity, even ones that are preferred by the person living with FXS, can demand a lot of energy. Pace yourselves through the activity and take breaks as needed.
Fragile X Syndrome (FXS) is a genetic condition, affecting around 1 in 4000 males and 1 in 6000 females. It can cause a wide range of difficulties with learning, as well as social, language, attentional, emotional, and behavioural problems.
Some people with fragile X syndrome can live independently. Studies show that about 4 in 10 people AFAB and 1 in 10 people AMAB with fragile X syndrome grow up to have a high level of independence. People AFAB have the following abilities more than people AMAB:
Apr 5, 2024 · Causes. Diagnosis. Treatment. Inheritance and Screening. Fragile X syndrome is a medical condition that causes intellectual disability and other medical problems. It is the most common kind of genetically inherited intellectual disability, and the second-most common type of intellectual disability overall (after Down syndrome).
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Fragile X syndrome is a triplet-repeat expansion disorder. It is caused by pathogenic expansion of a CGG triplet repeat region within the FMR1 gene, located on the X chromosome.
