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1. rarediseases.org › rare-diseasesList of Rare Diseases | A-Z Database | NORD

   rarediseases.org › rare-diseases

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   What Is the NORD Rare Disease Database? With more than 1,200 rare disorders, you can explore rare disease reports that include information on symptoms, causes, treatments, clinical trials, and sources of help such as patient advocacy organizations.

   • Achalasia

     Achalasia is a rare disorder that typically affects adults...

   • Aarskog Syndrome

     Noonan syndrome with multiple lentigines (NSML) is a rare...

   • Acoustic Neuroma

     Learn about Acoustic Neuroma, including symptoms, causes,...

   • Abetalipoproteinemia

     Abetalipoproteinemia is a rare inherited disorder affecting...

   • Achondrogenesis

     Disease Overview. Summary. Achondrogenesis is a group of...

   • Aceruloplasminemia

     Aceruloplasminemia is a rare genetic disorder characterized...

   • Acanthocheilonemiasis

     Acanthocheilonemiasis is a rare tropical infectious disease...

   • Ablepharon-Macrostomia Syndrome

     AMS has been grouped within the category of diseases called...

2. rarediseases.org › state › ohioOhio - National Organization for Rare Disorders

   rarediseases.org › state › ohio

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   Ohio - National Organization for Rare Disorders. Interested in giving the rare disease community in your state a voice in state government? Learn more about NORD’s work on Rare Disease Advisory Councils (RDACs) and how you can get involved with RDAC activities in your state. Summary.

3. odh.ohio.gov › know-our-programs › ohio-rare-diseaseOhio Rare Disease Advisory Council

   odh.ohio.gov › know-our-programs › ohio-rare-disease

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   Feb 1, 2023 · The Ohio Rare Disease Advisory Council (ORDAC) is established by section 103.60 of the Ohio Revised Code. The ORDAC consists of 31 members appointed by the Governor, the Speaker of the Ohio House of Representatives, and the President of the Ohio Senate.

4. www.rarediseasesnetwork.org › about › what-are-rareWhat are Rare Diseases? | Rare Diseases Clinical Research Network

   www.rarediseasesnetwork.org › about › what-are-rare

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   Learn how a disease is defined as rare, why rare disease research is important, what causes rare diseases, and how you can help.

5. en.wikipedia.org › wiki › Rare_diseaseRare disease - Wikipedia

   en.wikipedia.org › wiki › Rare_disease

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   A rare disease is a disease that affects a small percentage of the population. In some parts of the world, the term orphan disease describes a rare disease whose rarity results in little or no funding or research for treatments, without financial incentives from governments or other agencies. Orphan drugs are medications targeting orphan diseases.

6. www.rarebeacon.org › rare-diseases › what-are-rareWhat are rare diseases? | Genetic disorders | Beacon

   www.rarebeacon.org › rare-diseases › what-are-rare

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   A rare disease is a disease that affects a small percentage of the population but there is no single accepted definition. The European Union and United Kingdom define a disease as rare if it affects fewer than 1 in 2,000 people, but there is no universal definition.

7. People also ask

   What is a rare disease?

   • A rare disease is a disease that affects a small percentage of the population. In some parts of the world, the term orphan disease describes a rare disease whose rarity results in little or no funding or research for treatments, without financial incentives from governments or other agencies. Orphan drugs are medications targeting orphan diseases.

   Rare disease - Wikipedia

   en.wikipedia.org/wiki/Rare_disease

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   How many rare diseases are there?

   • A rare disorder is a disease or condition that affects fewer than 200,000 Americans. Cumulatively, there are more than 10,000 rare diseases affecting more than 30 million Americans. NORD is committed to the identification, treatment, and cure of rare diseases through education, advocacy, research, and service programs. Need more help?

   List of Rare Diseases | A-Z Database | NORD

   rarediseases.org/rare-diseases/

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   How many rare diseases are there in Europe?

   • In Europe, a disease is defined as rare when it affects less than 1 in 2,000 people. While these numbers may seem small, consider that there are more than 10,000 known rare diseases which affect around 25 million people. That is roughly 10% of the U.S. population. It is further estimated that 350 million people suffer from rare diseases worldwide.

   What are Rare Diseases? | Rare Diseases Clinical Research Network

   www.rarediseasesnetwork.org/about/what-are-rare-diseases

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   When is rare disease day?

   • National Organization for Rare Disorders. Archived from the original on 18 December 2008. ^ "Millions Around World to Observe Rare Disease Day". PR Newswire. 13 February 2009. Retrieved 14 February 2009.[permanent dead link] ^ "Rare Diseases Day: Experts call for more research for patients' welfare". The Indian Express. 28 February 2021.

   Rare disease - Wikipedia

   en.wikipedia.org/wiki/Rare_disease

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8. newscenter.lbl.gov › 2019/12/03 › rare-disease-qaRare Disease Q&A: What Rare Diseases Are and Why That Matters

   newscenter.lbl.gov › 2019/12/03 › rare-disease-qa

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   Dec 3, 2019 · Nomi: There’s no single definition of “rare disease” because it depends on which region or group you’re talking about. In the U.S., a rare disease is legally defined as one that affects fewer than 200,000 people; in the EU, a rare disease is one that affects fewer than 1 in 2,000 people.