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  2. Jan 1, 2001 · Alexandra Deford, a precious and precocious girl, was just eight years old when she died in 1980 following a battle against the debilitating effects of cystic fibrosis, the number-one genetic killer of children.

    • Biography

      A biography (from the Greek words bios meaning "life", and...

  3. Alex: The Life of a Child is a biography and film about the life and death of Alexandra Deford from cystic fibrosis. After her death in 1980 at the age of eight, her father, Frank Deford, a sportswriter, was inspired to write a memoir about Alex three years later. The book depicts Alex's determination to make the best of her circumstances and ...

  4. In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal.

  5. Alexandra Deford, a precious and precocious girl, was just eight years old when she died in 1980 following a battle against the debilitating effects of cystic fibrosis, the number-one genetic...

    • Frank Deford
    • Rutledge Hill Press, 1997
    • illustrated, reprint
    • Alex: The Life of a Child
  6. Feb 28, 2018 · Alex: The Life of a Child is THE book about life with cystic fibrosis. In the world of cystic fibrosis, many read it upon learning about the diagnosis of their child. Some parents hide it from their children, hoping they never find it… others read it with their kids.

  7. Feb 24, 2015 · Alex: The Life of a Child. A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In...

  8. ALEX: The Life of a Child. by Frank Deford ‧ RELEASE DATE: Oct. 1, 1983. In 1972, Deford's five-month-old daughter Alexandra was diagnosed as having cystic fibrosis, an always-terminal, degenerative lung disease; expected to live only two years, she died in 1980, just over age eight.

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