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Welcome to the Marfan Syndrome Support Group website. We hope you will find our site helpful. It is our hope that we can show our support to you and your family through friendship and people to listen.
Marfan Syndrome is a genetic Connective Tissue Disorder, discovered by Antoine Marfan, a French doctor, in 1896. Connective Tissue is the tissue that binds our bodies together. Being genetic, 75% of Marfan patients have inherited the condition from a parent and 25% are new mutations.
In Marfan syndrome, one of the fibres (called Fibrillin) in the connective tissue is defective, leading to weaker connective tissue. This means that people with Marfan syndrome tend to grow taller; have longer arms, legs, fingers; flat feet; and have lax joints that can bend more than other people.
Marfan Syndrome Support Ireland. 1,418 likes · 21 talking about this. Support group for patients, families and friends affected by Marfan Syndrome and Loeys-Dietz Syndrome in the North and South of...
We got in touch with the Marfan Syndrome Association in the UK and we discovered that there were a number of people in this country affected with this condition. We contacted them regarding setting up a Support Group in Ireland.
Marfans Research Foundation originated in the Mooncoin / Kilmacow area in County Kilkenny in Ireland. It was set up by family and friends of the McGrath family from Kilmacow who are directly affected by Marfan Syndrome.
Marfan Syndrome Support Group provides information and support for people living with Marfan Syndrome and their families. Visit Website SEARCH OUR INFORMATION HUB
